The National Patient and Stakeholder Council (NPSC) is comprised of patients, patient caregivers, STRIDE Study leaders, clinicians, and community stakeholders. The members represent a diversity of stakeholder type, sex, race/ ethnicity, and geographic location.
The NPSC will provide guidance and advice to local councils and site PIs; gather input from the 10 local councils and communicate it to study leadership; participate in the continued improvement of study methods during the trial; and support the sharing of STRIDE Study results in patient-friendly and accessible ways.
MAUREEN FAGAN, DNP, MHA, Co-Chair, NPSC
Executive Director, Center for Patients and Families Brigham and Women’s Hospital (BWH) in Boston, MA
Associate Chief Nurse, OB/GYN Brigham and Women’s Hospital, Boston, MA
As the leader of the Center for Patients and Families, she has focused her attention on creating and supporting Patient and Family Advisory Councils in large service lines, department or unit based care improvement councils and hospital-wide nursing meetings including the BWH Nursing Educational Literacy Council. Dr. Fagan introduced fourteen patient and family advisors to the Brigham Research Institute in 2012 to create strategic partnerships among scientific and clinical researchers to advance the caring science of patient and family-centered care.
Currently, there over ninety Patient/Family Advisors and seventeen Councils at Brigham and Women’s Hospital. Dr. Fagan is a strong proponent of patient and family-centered care who believes that harnessing the expertise of families to reveal and represent their loved one in the hospital or in an ambulatory setting enables all hospital caregivers to tailor their care plans and care experience to each patient specifically.
Dr. Fagan received her RN from Memorial School of Nursing in Albany, NY, her NP from Albany Medical College, and both her Masters in Health Administration and her Doctorate of Nursing Practice from Simmons College in Boston, MA.
MARTIE CARNIE, Co-Chair, NPSC
Senior Patient Advisor
Co-Chair of Brigham and Women’s Hospital Patient and Family Advisory Council Steering Committee
Martie Carnie, a 24 year, three-time survivor of breast and melanoma cancers, is a founding member and past co-chair of Dana-Farber’s Adult Patient and Family Advisory Council. Currently she is a Patient Advocate, Senior Advisor and Co Chair of Brigham and Women’s Hospital Patient and Family advisory Council Steering Committee. She is active on numerous councils, committees and projects, including patient safety, patient rounding, JC, Ambulatory Care, Care Improvement Teams, and coordinating activities at Dana-Farber and Brigham and Women’s Hospital. She is a frequent spokesperson at conferences and seminars about patient-centered care, the patient experience, patient safety and the Voice of the Patient in Design and Health Care.
In her working career, Martie was a veteran professional of national white and yellow pages marketing, and has been a customer care/call center manager and trainer at Verizon. She has broad skills as an advocate, resource counselor, writer, and customer care, marketing and educational program designer and trainer.